June 5, 2019 at 1:09 pm #37997
I’ve read forum posts about autoinoculation and know it’s rare. I’ve had oral HSV-1 since ~age 8, now age 29. In 2014, had bloodwork done to figure out which HSV I had, + for HSV-1. 2017, bloodwork done again, had NO HSV antibodies, still having outbreaks like always (~7/yr). In Jan, had a bad cold sore (used acyclovir cream). Also was having burning when urinating so I slept w/o underwear 1 night, just loose shorts. I touched the sore while sleeping a few times, it was painful enough to wake me. Woke up the next morning w/ my hand inside my shorts, resting on my crotch. I remember thinking “probably not good”, did a lot of googling, ended up not being worried based on what I read. Later that day felt tingling on my labia, saw a sore that looked similar to cold sores. My partner of 4 yrs (monogamous, HSV tests neg before we started dating/no symptoms still) & I had sex the day before, thought maybe we’d been rough & was about to start my period, thought maybe it was related. Waited a few days, didn’t clear. ~4 days after the sore showed up, had it swabbed, PCR test was neg for HSV. In Feb, felt discomfort again, couldn’t see anything except a scrape (?) on my labia. Again, sex the day before, was about to start my period. Saw an OB soon after, she said everything looked healthy. Last week had another VERY tiny sore appear on labia (sex & period ditto). I’d had 3 cold sores the prior week, was on acyclovir (400mg). Saw diff OB ~48 hrs after it appeared; PCR swab again was neg. Blood test was + for HSV-1. He started me on a suppression regimen, didn’t say if he thought genital sores were HSV despite 2 neg PCRs. A diff Dr. (never examined me) said yesterday over the phone it is likely HSV. They said my immune system is low, likely due to stress. Given the rarity of autoinoculation and the negative PCR’s, what’s your opinion? I was told to wait for another sore and get it tested that day. The recurrence, symptoms, and timing (near periods) certainly is suspicious to me.
June 12, 2019 at 9:06 am #38177
My opinion is that herpes genitally is highly unlikely but not totally impossible. But with two negative PCR swabs, I think that increases the likelihood that this isn’t herpes. And HSV 2 seems unlikely since you had bloodwork that was negative and so did your partner.
I’ve only seen new genital infection with HSV 1 in a person with a stated history of cold sores once in my practice in 33 years so that suggests it is highly unusual. I would suggest that if you get a sore again, you have it swabbed once more using PCR the first day it shows up.
To say this sounds like herpes without ever examining your and telling you it is due to stress seems just a bit cavalier to me, how about you?
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