July 1, 2023 at 1:59 pm #82198
I wanted start by thanking you for this website as doctors have been making me feel insane and wanted your expert input on what you make of my situation
End of February had sexual encounter, with condom to start he took it off the last 5 minutes not even not that it makes a difference I don’t think
A week went by had weird symptoms diagnosed with Trich and BV
Have been in monogamous relationship over 10 years was cheated on got drunk made a very irresponsible choice in doing that at all
I’m OCD and have been anxious everyday since
After months requesting I finally got my Ob to test me he did a PCR of a tear he believed was from me checking so much came back negative
IGG value was <0.2 for both 1&2
IGM value <0.68
I’ve learned they’re not reliable. The tests were a little over 9 weeks from encounter.
Developed a rash on eyes spread to nose and around mouth derm said it was dermatitis got doxycycline which cleared but has come back has me worried
Urine cultures coming back with abnormalities and changes constantly some are as follows
WBC bacteria mucus RBC blood protein and more.
Have random dull pains all over upper and lower back thighs different areas in stomach groin feelings of pinching in genital area some discomfort, no ulcers I’ve noticed I check daily, very odd discharge not normal for me milky white/watery consistency no smell anal itching urgent care said was a hemorrhoid Throwing up all the time to the point of blood Please help idk what’s wrong the doctors I’ve seen which is so many ER Urgent care PCP OB they make me feel like I am insane I’ve asked for medicine for HSV to be safe. Have yet to have a diagnosis from abnormalities in blood and urine. Are the symptoms herpetic and concerning, was testing at the time adequate enough. I’m so concerned for my kids, and this is taking a toll on me every day. I don’t eat I’ve lost a lot of weight. I don’t know what’s going on doctors don’t seem to be helping and I’m convinced it’s HSV
July 3, 2023 at 12:13 am #82208
I was wrong with the 9.5 weeks
It was 14 weeks 6 days from concerning encounter not sure if that changes anything with the testing inaccuracy and symptoms that started since then idk if this counts as a follow up question as I don’t want to waste it but wanted to clarify
Also developed a bump on labia after sex this week which is concerning me A LOT waiting to hear back from doctor to see if she will see me tomorrow for a swab and another IGG
July 8, 2023 at 7:49 am #82249
By now, you should have had a swab test done. An IgG test done at 14 weeks from a specific sexual encounter, will pick up 92% of HSV 2 infections and 70% of HSV 1 infections.
None of your symptoms sound herpetic to me.
If you want to do the western blot for greater certainty, I would be happy to help you with that.
July 8, 2023 at 11:09 pm #82258
Yes I did have a swab done my doctor wasn’t able to see me, so I went to urgent care. Now this was about 3/4 days after I had noticed but the urgent care sent it in the wrong tube and solution (just my luck) went back the next day and had it swabbed again so about 4/5 days at that point
I also had a bump near my lip line swabbed he originally refused but when I went back I insisted this one was there about 3/4 days (I’m a picker so messed with it and was popping and picking it is inevitable, anxiety habit) the test was a PCR test and both were negative for both HSV1&2
I’ve read you can go too soon and also too late. Was that too late?
I seen my doctor after and she said it would have picked it up if it was HSV and the blood test was accurate but I know from reading on this forum most doctors aren’t fully educated on it and it can be inaccurate. So still have huge concerns if it was accurate or not. My doctors are refusing more IGG tests and thinks it’s in my head. That I had some trauma from the one night stand and std that I’ve ran down a rabbit hole.. But I don’t believe it is in my head
I feel pains I’ve never had so many issues happening with no explanation. Only after that one encounter it can’t be a coincidence
Can HSV present like perioral dermatitis to where my dermatologist would have misdiagnosed me? Have you seen that before?
My urine issues are very concerning as well
Since my doctors will not keep “entertaining” my very serious concerns as I’m at the doctors weekly, unable to sleep eat or function, I’m on this forum daily (such a wonderful place for accurate information so I can’t thank you enough!) I can’t stop checking myself although advised not to with my mental state. Terrified to be too close to my kids. I will definitely be looking to get the Blot with you I’ve signed up already for an account. I’m getting the money together to be able to get it now, is it still 450$
I’m sorry it’s such a long message, Thank you so very much for the response!
July 9, 2023 at 9:50 am #82285
I don’t think perioral dermatitis could be confused with HSV really.
You know that you can order your own IgG tests, don’t you? There are several online sites where this can be done without going through your own provider.
I think infection is very unlikely but you will likely need more lab reassurance in the future.
- This reply was modified 2 months, 1 week ago by Terri Warren.
July 9, 2023 at 9:28 pm #82301
I got a few more follow up questions today.
Yes I actually found a clinic near me after reading your response.
My questions are
Do you recommend that I get another IGG test now that it’s been about 20 weeks to see the levels?
Do you recommend that I just go with the blot since it’s over the 12 week mark for that?
Does HSV have an affect on your period, as in become irregular or any other type of affect you may know of?
How long does it change your vaginal discharge for?
Can the bumps be very small you can barely see them?
Do they always break open and ulcer, or do they fill back up and never open if for example you were to try and pop it?
Why does the CDC do IGG & IGM tests and not the western blot if that one’s the most certain? Is it because it’s only available at the university of Washington so they don’t have a say over it?
If you use a steroid cream on HSV what would happen, does it make it worse or improve it?
If it makes it worse what does it do?
I’ve seen you say oral hsv2 shedding is less than oral hsv1. Does that include the outbreaks as well?
When I went to have the swabs done, in my previous post was that too late?
When is too soon or a swab and too late as I often get confused by the timing as I know it’s critical.
If it’s scabbed can PRC it pick it up or no?
If it’s not open can PCR pick it up after 4/5 days or no?
My urine has wbc in urine (sterile pyuria?) and no UTI. Isn’t that a sign of HSV? I haven’t had an explanation to it. It’s been going on for months now. I’m getting an ultrasound on my kidneys tomorrow.
Also had my stool checked and negative for all tests ran.
July 9, 2023 at 10:06 pm #82302
I wanted to write out all my abnormal urine results over 3 separate visits in order for you to review if possible please and thank you!
March 3rd (this was the trich diagnosis visit)
Blood small 1+
Ketones 5 trace
Urobilinogen 2.0 high
Leukocyte large 3+
June 15th PCP visit
Blood value small 1+
Ketones value 15 1+
Leukocytes value small 1+
June 20th throwing up blood prompted er visit
Protein value 100 2+
Blood value small 1+
Bacteria value 1+
Hyaline casts value 2+
WBC casts value 3+
All visits no significant growth everything else normal or negative
I’m very concerned with so many urine results being all over the place and I’m wondering if this is related to a possible HSV infection. They don’t think it’s related that’s why I am getting my kidneys ultra sound but if that comes back fine, what else could it be? As this all seemed to start after that encounter.
Are these all something you would see with someone with HSV?
Hemoglobin and hematocrit on blood tests were high as well. Iron levels low as well.
All these abnormalities are causing severe negative thoughts about HSV and been causing me to have suicidal thoughts as well
What are your thoughts with the results? Sorry for the double post I had to go over and write everything down and come back to make sure I had it all right which caused the double post would you be able to address them both?
July 15, 2023 at 11:24 am #82327
You had 55 white cells in your urine in June – were you treated for a UTI? What did your doctor tell you was going on?
These urine values do not suggest herpes to me, not at all, but I do wonder what’s going on with you.
You need to believe the negative IgG test at 14 weeks out. I’m curious about why that’s difficult for you? If you got it in your head that you were diabetic, for example, and a blood test showed that your blood sugar was normal, would you not believe that you didn’t have diabetes?
I would strongly encourage you to visit your regular provider and get these urine abnormalities evaluated and treated, if appropriate. And stop thinking you have HSV – your test indicates that you do not.
July 16, 2023 at 11:21 am #82345
So over all my appointments I was not treated for a uti they said I didn’t have one? But also didn’t explain all the abnormalities and said that it could be from it not being a clean catch so that’s why there was abnormalities but it was a clean catch..
While I was waiting for your response I ended up going to get another igg test and it was the same values and this was a little over 20 week now.
I’m finding it to be very difficult to believe it due the body pains I’ve acquired only since that encounter, the dermatitis on my face that comes and goes, started to notice pains in my hips and also above them on my side, my discharge is different. Just everything going on with me only started after that. Wearing tight pants is uncomfortable sometimes.
Yes I see your point with the diabetes, the problem I guess I’m having with believing the test itself besides how I’ve been feeling is that it’s such a horrible test for accuracy for negative and positives. Not knowing for sure if it’s a true negative or not.
I have an appointment this week with my pcp since every test she’s ran came out fine to see what she suggests now.
July 16, 2023 at 10:27 pm #82350
Maybe I should also go into a deeper explanation to my symptoms I had with the trich diagnosis, I didn’t have enough space to include that originally as I wrote so much.
And I will be purchasing more follow up questions as well.
So it was 15 days exactly after encounter, I went to er for extreme burning that a shower didn’t help relieve or boric acid as I’ve used them before to regulate ph if/when needed it helped but not enough. I tried checking myself and seemed super red swollen and irritated. Prior to the discomfort and er visit I had lots of yellowish nasty discharge (I know that specifically was from the trich) and going to the bathroom frequently and urge to pee was strong sometimes little urine would come out sometimes with pain during urination. Color of urine was dark. I don’t recall having a fever or having swollen lymph nodes still to date.. I’m trying to remember everything bc at the time I didn’t think hsv until a little while after I’ve always had a terrible memory so I’m trying to piece it all together and remember everything. My doctor thinks that I have some trauma from the encounter and everything that’s followed since, being in such a long relationship since high school that was unhealthy. Then doing that while being completely wasted as I’m not a drinker and had well over what I could tolerate. My main concern is for my children, so I will be doing the western blot for my own mental state and to be safe and sure. I just feel like something is truly wrong with my body, I just haven’t felt the same since and I’d like to put this behind me in such high hopes the wb will reflect a negative. If all my doctors tests are coming back negative and this only started after that night, I can only think it’s std related as nothing else is making sense. I just wanted to explain that a bit more to see if your opinion changes as I trust your judgment I just don’t want to miss anything and I feel I have. I appreciate your time and care.
July 26, 2023 at 4:57 pm #82396
The only thing that I wonder about here is a UTI and why you weren’t treated with 55 white blood cells. If you want to do a western blot to find out your herpes status for sure, wait 12 weeks from the concerning encounter to do blot
You must register to ask your own question or be logged in to reply to this question.