November 4, 2020 at 7:35 am #71639twi8806Participant
-first noticed symptoms in April 2020
-3 negative PCRs done. Very mild outbreaks that were barley visible and only on clitoris
-Blood test Igg 5.5 HSV2 July 2020
-began daily suppressive using valtrex. Started at 1000mg but gave me headaches so I dropped to 500mg. I do take 1000mg a couple times per week now if I’ve had lots of nuts or at least 1 alcoholic beverage
-My first outbreak the dr didn’t think was herpes because it was just a tiny red dot. Had about 3 more small outbreaks around the time I initially started on valtrex and for the first month
-it’s been just over 2 months now with no outbreaks (3 months on medication)
-Also got a bartholin cyst and uti at the same time as hsv2
-Also thinking I could have gotten vulvodynia as a result of the herpes…
-Even though I haven’t had any outbreaks I have constant burning/tingling in the entire outer genital region. The burning is increased on the right side (outbreak occurs on the right side of my clitoris only)
-When aroused burning is worse. Can’t enjoy and orgasm/barely feel it. Not like before.
-Asked dr if I should switch to acyclovir or try nerve pain medication. She gave me RX for both but said I need to do one at a time. If I try the acyclovir do it for 4-6 weeks before trying nerve medication
-When she put the speculum in me it hurt/burned like never before and I can’t imagine having sex.
-At this point it’s been 6 months of continuous discomfort. What would you recommend as far as medication and in what order? I just really want relief.
-I’ve read a couple people online say they had constant prodrome with valtrex but couldn’t find any additional info on it.
-She prescribed amitriptyline 10mg for nerve pain
November 5, 2020 at 4:10 pm #71653Terri WarrenKeymaster
The 5.5 result indicates that you are very likely positive but you may wish to get a confirmatory western blot because your PCR tests are negative and because your doctor has not seen an outbreak that looks like herpes. If the valtrex is not making you better, that supports the idea that you need confirmation. And herpes does not cause constant burning like you are having now. You may have herpes, I don’t know, but the symptoms that you are experiencing are not consistent with herpes.
November 13, 2020 at 10:28 am #71760twi8806Participant
1. Do you have any feedback about hearing different experiences of people who have taken valtrex verses acyclovir? Have you heard of anyone saying valtrex gave constant prodrome symptoms?
2. I began the nerve medication and the burning/tingling is greatly reduced. Though I did have another one of those tiny outbreaks again 2 days after beginning medication which I am assuming was caused by the drowsiness that the medication brought on. When I have had the outbreak I felt prodrome symptoms for about 2 minutes but it didn’t hurt at all once the sore came it was more of a visual thing. Have you heard of this before?
None of the outbreaks themselves have ever been painful and they are always gone within a 3-4 days. These past 6 months have just been so confusing.
November 25, 2020 at 9:19 am #71850Terri WarrenKeymaster
I’ve not heard someone say that Valtrex or acyclovir causes prodromal symptoms, no. Valtrex just has the ease of once a day dosing.
2. I honestly think that you need to get these tiny outbreaks swab tested a few times to know for sure if they are herpes or not.
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