Constant Symptoms

[Cantsleepeat]

Hi Terri,

I have a western blot already purchased with you and I will be getting it done in 3 weeks or so. I wanted to ask your thoughts on my ongoing symptoms and my testing. Here is the timeline.

Day 0 – Protected encounter
Day 2- Thigh irritation begins, feels like chafed thigh and sensitive to boxers rubbing
Day 4 – Day 15 99.2-99.5 Temp
Day 5 – Irritation worsens and start to get a rash in perineum, around anus, and in both groin folds
Days 6-42 Rash persists while fading and worsening. Burning feeling around all those areas, irritation bad the entire time
Day 56-current day 64 – Finally appear to be redness free, still feel burning feeling while walking in all three areas, still sensitive to irritation and unable to wear my boxer briefs

Testing done at labcorp below

I am OHSV1 positive at 27igg, rest of 10 panel always negative

HSV2 IGG results below
Day 8 I tested 1.43 igg with negative supplemental
Day 28 I tested 1.41 igg with negative supplemental
Day 42 I tested 1.27 igg with negative supplemental
Day 63 I test 1.38 igg with POSITIVE supplemental

I am so scared that I tested positive now on the supplemental. What is the likelihood that I am in fact positive with these test results? I have seen so many doctors and all of them wrote me off saying its impossible to be a STD. Please share your thoughts with me. Thank you

[Cantsleepeat]

I forgot to mention no response to hydrocortisone cream, ketoconazole cream, aclovate ointment, triamcinolone ointment and oral fluconazole. I saw plenty of Dr’s with no diagnosis made other than dermatitis vs std.

With the western blot, is 12 weeks full accuracy? I understand the test is 99 percent accurate at 12 weeks but what percentage of people actually seroconvert by 12 weeks?

[Terri Warren]

I’m just not sure what this could be but we’ll know with the blot. The 12 weeks out is fine. the vast majority of people seroconvert way earlier than 12 weeks but a few can take that long to seroconvert, yes.

When you were using the creams, did you give them adequate time to work? Treatment for a fungal infection can take weeks to work.

This rash doesn’t sound at all like herpes to me and we know that damn supplemental test is deeply flawed in the way it is read. Please – give it time.

Terri

[Cantsleepeat]

Thank you for your response and I am glad you are on the mend and feeling better. I hope you continue to strengthen and have a full recovery!

The way the topical steroids were prescribed, I used them for two weeks on, one week off. The oral fluconazole was a 7 day regimen. I saw no response or improvement with the use of any of those products.

Today, I am probably at about 60% improvement from my worst, with time being the only thing that has helped. I am unable to wear my normal boxer briefs and still must wear loose cotton boxers. I no longer exhibit any redness, just continue with the same sensitivity, irritation and discomfort. Sometimes I will feel tingling, sometimes it itches very briefly, and sometimes the scrotum feels painful when it rubs against my thigh. The one canstant in the bilateral groin fold irritation and in the perineum. I have not seen a breakout or lesion yet that looked like hsv, just my typical folliculitis with white pus and typically a hair centered.

I forgot to mention that at day 26, day 30 and day 70 I had pcr dna swabs done at my dermatologist office for hsv. They swabbed only the area where I was having discomfort, so mainly my groin folds and perineum. They did not swab my rectum or penis. All three tests returned negative, but after reading I am not sure if the correct area was swabbed to detect shedding without lesion.

I have had zero sexual contact since this event. In your opinion, with my symptom list and timeline, have you ever seen another person present this way for hsv2? My doctors now all agree this is hsv2 due to the change to a positive supplemental and believe that all my symptoms are now related. I would love any insight on your experience to either lead me to hope or acceptance. Thank you for your help.

[Terri Warren]

I’m not buying it. We need to wait for the blot results – it should be just about time for you to do that correct?

Terri

[Cantsleepeat]

Yes, this week is 12 weeks. Unfortunately, I just caught covid 4 days ago and I am currently having a rough go with it. Do I need to wait any additional time once I recover so the blot results are not affected?

[Terri Warren]

I’m sorry you aren’t feeling well, COVID can be difficult.
There is no reason to wait longer to get tested, no.

Terri

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