October 5, 2021 at 3:18 pm #75100anxiousmom2021Participant
My hsv journey started when I was a teenager and I had my first oral OB. I didn’t realize what it was at first and fooled around with my boyfriend at the time and have a distinct memory of him touching my lip and then touching my vagina. I don’t remember how long it was after but shortly after that I experienced redness and burning on my vulva, perineum, and anus. There weren’t any sores but treating it with antifungals did not help. I went to my gyn at the time and they stated that it did not look like hsv and I didn’t receive any testing.
For the next 10 years I had occasional episodes of mild burning and redness mostly on my perineum and anus that I just ignored and thought was sensitive skin. Usually sleeping without underwear for a night or 2 would clear it up.
However, when I was 38 weeks pregnant I had an episode of the genital burning and redness and then when I examined further, I found 2 small bumps on my labia minora that looked like tiny pimples with white heads. The bumps themselves were painless and did not itch or burn. My OB visually diagnosed them as hsv and put me on acyclovir. A week later, they hadn’t changed at all and I requested that she do a swab test. She cultured them and it came back negative. I ended up having a c-section because my OB stated we had had to assume it was a false negative and that the visual diagnosis and risks to baby were enough reason. I agreed. However, the bumps didn’t go away with the acyclovir so I requested to try valtrex 5 weeks after they had appeared. 3 or 4 days after starting the valtrex they still hadn’t changed and I became impatient so I scratched at one and a small amount of thick white discharge came out. After that, it resolved. I am still having episodes of the burning and redness without lesions and my pcp attempted to PCR swab but used the wrong swab. I can’t do a blood test because I am still taking daily valtrex. I am very anxious. Does this sound like ghsv to you?
October 8, 2021 at 10:49 am #75131Terri WarrenKeymaster
It does not sound like herpes to me, but you can certainly do an antibody test now. Valtrex is only an issue when taken for an extended period of time right after a new infection has happened. I don’t think that is the situation with you.
Anything that lasts this long is highly unlikely to be HSV, especially with a negative PCR. But the antibody test (type specific ) will help you know with more certainty.
- This reply was modified 1 week, 4 days ago by Terri Warren.
October 14, 2021 at 1:44 pm #75182anxiousmom2021Participant
Thank you Terri, I didn’t realize that valtrex only affected the igg test if it’s a new infection.
I have some other ?s. I think I have gotten cold sores in the past but I have never had one swabbed or had an antibody test. If I have gotten cold sores, I only get one every couple years or so and they’re a single pimple-like lesion that doesn’t have multiple vesicles or go through the crusting and scabbing stage. They do burn, itch, and hurt however so I’m pretty sure they’re HSV. How common is it to have cold sores like this that don’t follow the normal stages or have multiple vesicles?
A few days ago I had some pimples on the border of my lips (pretty sure they were just pimples because they appeared the morning after using a greasy new chapstick, they were very tiny, they didn’t itch, burn, tingle, or hurt, and the contents appeared white, not clear yellow). They also went away after a day of not using that chapstick. I’ve been very careful to never kiss my baby on the mouth and usually only kiss her on the cheeks or head if I’m very sure I don’t have a cold sore. This morning I went to kiss my 4 month old on the cheek and she turned her head quickly so my lips grazed her lips. Now I can’t stop worrying that I actually had a cold sore a few days ago. I have been taking daily valtrex for the last 4 months because I worry so much and I haven’t gotten a cold sore that I’m aware of. I am also breastfeeding so I hope she has antibodies. What are the chances of me passing HSV to my baby through this exposure if I had a healing cold sore when our lips grazed each other? What about if I hadn’t had a cold sore? How protective are the antibodies that my baby receives from breastfeeding?
Is it possible for cold sores to be completely painless and not itch, burn, or tingle?
I also worry that I’ve had intraoral outbreaks and never noticed them or thought they were mouth pain from another cause. How common are intraoral outbreaks and do they go unnoticed?
October 15, 2021 at 2:23 pm #75218Terri WarrenKeymaster
There is zero chance that you gave your child HSV 1 through the contact that you describe. You can stop worrying about that now. Intraoral outbreaks happen but uncommonly.
By the time your baby is 4 months old, they are likely to be able to tolerate acquiring an HSV 1 infection, if that is your worry. But given everything you are doing, I think that chance is incredibly remote.
It is possible to have cold sores that don’t have major symptoms, but n=most of them surely do have itching, tenderness, sometimes throbbing.
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