July 21, 2019 at 7:26 pm #44265
First, thank you so much to your clinic for being such an amazing resource. It’s been truly comforting and enlightening to look through this message board.
I’m a 26 year old female who was diagnosed in Jan 2014 with GHSV1. Diagnosed positive with culture but exhibiting an abnormal presentation (no blisters, but “papercuts” on my perineum)–my initial diagnosis was actually a UTI! As with most people, it was transmitted to me through oral sex with a college boyfriend. In the 5+ years since, I’ve had only 3 outbreaks: a primary outbreak, one about 2 months later, and one ~3.5 years ago.
I think about it very little in general but I’ve recently become single after being in a monogamous relationship with a OHSV1 positive man for 3 years (so no risk). I believe in disclosure of course but I was also doing more research and saw some interesting, recent findings that asymptomatic shedding 9f GHSV1 is actually at 0% after 2 years post-infection, although this is a small sample size.
Wald A. Sexual practices and oral and genital herpes simplex virus shedding patterns among a cohort with laboratory documented first episode genital HSV-1.
What are your thoughts on transmission in my case? Should I be worried even if condoms are used? I want my partners to be fully informed of course, but I’ve also felt the sting of rejection in the past from men who didn’t understand HSV1 vs HSV2. To be fair, I knew nai little until I was affected.
Thank you so much,
- This topic was modified 6 months ago by Storti.
July 21, 2019 at 7:32 pm #44267
Clarification of source: Wald A. Sexual practices and oral and genital herpes simplex virus shedding patterns among a cohort with laboratory documented first episode genital HSV-1. Dublin: The International Union against Sexually Transmitted Infections (IUSTI) World & European Congress; 2018.
July 26, 2019 at 9:25 am #44534
Bumping and to also mention during my last outbreak I had too few cells to identify with direct fluorescent antibody (had to culture) and to ask about GHSV1 to mouth transmission.
July 29, 2019 at 9:28 am #44626
A more recent paper did show some shedding in people with genital HSV 1 but at 2 years out, exceedingly low. And if your partner has oral HSV 1, the risk of him getting it genitally is EXTREMELY low. If I were in your situation, I would honestly take this off the worry list. Your circumstances are very good in regards to HSV 1 transmission. You also are EXTREMELY unlikely to get this orally as well.
July 29, 2019 at 4:09 pm #44637
Thank you, Terry! What about giving it to a partner orally from my genitals? Is that probable?
Now that I’m single and looking to start dating, my situation is that I definitely want to disclose if it’s a true risk to future partners but don’t want to freak them out if it’s extremely low. And given the already super low risk, OHSV1 prevalence, and how well established my infection is with no recurrences in over 3 years, would you advise me disclosing for short term dating?
I would definitely disclose if it was a long-term relationship and we did not plan on using condoms.
July 31, 2019 at 10:38 am #44749
It isn’t likely that you would transmit either to the mouth or genitals of someone else.
As for disclosing, how are you going to know if it is short term dating or a budding long term relationship when you start out? I don’t think this is about transmission now, I think it is about trust. What if you don’t disclose, start off casual and become more serious? And then you disclose? What else have you not told me, may come up. I don’t know, people all handle this a bit differently
July 31, 2019 at 3:14 pm #44760
Thanks, Terry! Since I just ended a very long-term relationship I am not planning on seriously dating or starting a new relationship. What transmission stats should I quote to future partners if they are HSV1 negative?
August 10, 2019 at 6:26 am #44982
We don’t have transmission data for HSV 1 BUT we know that people who have genital HSV 1 shed very infrequently -the latest data from Dr. Christine Johnston at UW is that people who have had genital HSV 1 for 2 years shed on about 1.3% of days – that’s about 4 days out of the year! Pretty good, huh? It is more frequent in the first six months of infection.
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- This reply was modified 5 months, 1 week ago by Terri Warren.
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