December 28, 2019 at 3:59 pm #68212
Hi Terri. Last week my radar went off when I experienced two potential HSV symptoms after kissing and receiving oral sex from a new partner on 12/14. (Have never been diagnosed).
Two days after my encounter, one small, clear blister appeared on the inside of my lower lip, maybe about 1 mm in size. It didn’t cause much pain. I freaked out, but my doctor said it was simply a mucocele.
Then 3-4 days later, I noticed extremely tiny bumps — about the size of a pen point, if not smaller — on the top of my penis head after I noticed dry skin in the area (I’m uncircumcised and this can happen occasionally). The bumps were painless and looked similar to my past bouts with balanitis (yeast infection). Two different doctors agreed and said it looked nothing like HSV.
The blister on the inside of my lip shrunk and disappeared in a few days, and the tiny bumps on my penis cleared up by the third morning after I noticed them (that was about four days ago from today).
But since 12/25, I’ve experienced a tingling, quivering sensation at the bottom of my front left thigh (right above my knee cap) that has lasted about three days and has never happened before. I’m concerned this could be herpetic neuralgia, though I know it’s uncommon. I may be having a fleeting cramp feeling in the back of my left thigh, but it’s so slight I could be imagining it.
The trembling I feel isn’t visible from the outside, I can’t seem to stretch or massage it out, and it feels as if it’s happening right below the muscle and out of my reach. It isn’t causing me “pain,” at all, it’s just annoying.
I have no other HSV or initial outbreak-related symptoms appearing from what I can tell (no fever, or aches in my right leg or anywhere else that seems unusual).
I know body cramps and leg pain can be associated with HSV. Does this sound like postherpetic neuralgia or something related to HSV? What’s your overall impression?
- This topic was modified 9 months ago by indiana. Reason: Adding that I have not been previously diagnosed with HSV, past tests have come up negative
January 6, 2020 at 12:26 pm #68586
Body cramps are not associated with herpes. To me, this sounds nothing like herpes. I think the correct diagnosis of a mucocele is correct. And the penis lesions do not sound herpetic to me either. Have you done any antibody testing?
January 16, 2020 at 8:34 am #68780
Hi Terri! Didn’t see you responded until now but thank you. The blister on my lip occurred again and was confirmed as a mucocele.
I took an IgG for HSV1 and HSV2 on Jan. 4, which was the three-week mark since my last sexual contact before these things started to occur. The IgG (and IgM) came up negative. I have plans to retake the IgG or order a Western Blot when I reach the 12-week mark in March.
I visited my PCP and a physical therapist to find a reason for the pins and needles tingling in my left leg above my knee, and my PCP said it originated in my muscle and PT thought it was nerve-related. Either way, neither could pinpoint a cause.
The sensations finally stopped exactly seven days after they began. For a week after that, I only felt the pins and needles during the night if I slept on my side too long, but now that has stopped, too. The whole thing was just really strange with weird timing.
I feel a little more comfortable knowing the other symptoms don’t seem related to HSV, but I guess I was initially concerned the timing of these leg sensations meant it could be caused herpetic neuralgia, radiculopathy or paresthesia, from the few things I was able to find on the topics.
Thank you again for responding to my first post. Though I didn’t give you very much new info, do you still believe these symptoms don’t warrant concern in relation to HSV?
January 20, 2020 at 3:49 pm #68830
Hi Terri! In addition to my question above, I wanted to ask if there are clinics in the Los Angeles area you know of where I would be able to get blood drawn if I were to go through Westover for a Western Blot order?
I searched Any Lab Test Now, which I saw you mention before in a different post, but I didn’t see anything listed in California.
January 24, 2020 at 5:35 pm #68889
Yes, I still do not believe these are symptoms of herpes. Of particular interest to me was the fact that you have this tingling sleeping a certain way which suggests to me that you’re having some body parts pressing on the nerve. The pins and needles feeling in arms hands or legs during sleep is very common and is generally related to what I described just now. There is a lab in the LA area that we use to draw Western blots, yes. It is not the lab that you describe. If you want to do that, we can arrange it
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- This reply was modified 8 months ago by Terri Warren.
January 27, 2020 at 10:34 am #68968
Good morning, Terri! Just submitted payment for follow up questions.
So, I had something really weird happen yesterday afternoon.
While working on my laptop, I felt a quick and sharp sting on my lower lip. I ran to the mirror to see if anything was happening — and to my surprise, I saw that a small patch of skin below my middle lower lip had turned noticeably red (but not on the lip itself).
This was right below the vermillion border of the lower lip. The total size of the red area was about half the diameter of a penny at maximum.
I looked closely at the area with a flashlight and saw two tiny bumps. They were both a little smaller than the tip of a ball-point pen, but one was slightly bigger than the other. When I looked extremely close with a flashlight, the bigger one looked to have a little white tip. This tip was maybe the size of a needle point.
Considering the sharp sting, redness and bumps, I believed I was seeing the beginning of a cold sore. (Again, I haven’t been diagnosed and never had a cold sore before — I’m planning to get a WB in March).
And yet, the redness disappeared an hour later and all that was left by then were the two tiny bumps.
But this morning, just about 12 hours later, the area looks normal. The smaller bump is gone and the bigger bump is 99 percent gone and I can only see a remnant of it with a flashlight.
I really expected things to progress overnight and figured I’d get a swab today, but it cleared up so quickly my doc would think I’m crazy to even ask.
I only had pancakes that morning so don’t think this was a reaction to food. My lips have been chapped for the last month but have gotten better.
I‘ve had skin problems this week, like worse than usual acne on my rear, lower back and cheeks. I have a few red spots on my inner thighs I wanted to ask about but they’re minor and I doubt we would be able to conclude anything without a visual inspection.
What happened to my lip doesn’t sound like textbook HSV off the bat, but I’m not sure — what are your thoughts?
- This reply was modified 8 months ago by indiana.
January 27, 2020 at 11:33 am #68970
Additionally, if I do have the virus, could it be trying to develop a full-on outbreak and my immune system is just fighting it off well, given the minor potential symptoms? Or could this be a sign of a shedding phase and not necessarily a full on outbreak?
January 27, 2020 at 12:38 pm #68990
What happened on your lip is nothing like textbook herpes! You did not progress to blisters, your bumps healed extremely quickly, everything went back to normal, this sounds absolutely nothing like herpes to me. I don’t think you are working on developing a full blown outbreak. If you had brand new herpes, your immune system would know nothing about herpes in your and could not fight it off that quickly.
February 13, 2020 at 11:22 am #69263
Hi Terri, I haven’t had any other apparent symptoms since the last time I messaged you, but I was diagnosed with ureaplasma after taking a urine test with my urologist, and I am currently on antibiotics for that. I booked the appointment after I noticed slight abnormal discharge over the last few weeks. It only happened in the mornings and I wasn’t sure if it was semen or not. The antibiotics seem to have cleared it up, though.
As for HSV, my plan as of now is to draw blood for a Western Blot on March 9, which would be two days after my 12-week post exposure mark.
I’d like to go through you to receive the WB (I’m based in L.A.) and would like to set up an eVisit with you. But, how far in advance would we need to book the video appointment with you before drawing for the blot?
I am considering doing one last IgG on 2/21, which would be at the 10-week mark just to see if I would get a positive result then (my last test at 3 weeks came up negative).
I’m not sure though, and I am still thinking about letting the WB be the one and only answer. One and done.
Considering your typical schedule, would it be plausible for me to book an eVisit the first week of March and still be able to take the WB on March 9? Or is this something I should be scheduling now? If so, I may skip the IgG and just do the blot (I already ordered the kit from UofW).
February 14, 2020 at 1:31 pm #69276
I actually tried making an appointment with you through eVisit just now, and scrolled all the way through June and couldn’t find an open spot. I know you must be busy but wanted to see if this was normal or if maybe there was a bug with the eVisit app?
February 24, 2020 at 6:03 pm #69369
I have several appointments open tomorrow. I haven’t opened June yet.
February 27, 2020 at 5:42 pm #69410
Hey Terri, this is your appointment from 2/25 at 12:40. I received your email with the Western Blot info and made an appointment at the lab for 3/9. I emailed you to let you know but Gmail keeps sending me back a notification that the message isn’t going through to your email (delivery incomplete). Just a heads up… I’ll send you another message to let you know when the blood is drawn and shipped
March 1, 2020 at 9:17 am #69442
I recently moved this website to a new servcer and somehow, that screwed up my clinic email. but it is fixed now.
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