April 20, 2020 at 2:32 pm #69992Lauem3Participant
Thank you for providing this service. I came across a podcast today that featured you &thought it could put my mind at rest to get an expert opinion after mixed info
8 years ago I can down with flu-like symptoms and developed painful sores in my nose, mouth, on buttocks region, and near my genitals-from my first partner who had a history of oral cold sores.
I went to the walk in clinic and they said diagnosed it as genital herpes through visual examination. They explained the sores were crusted and therefore they did not do a culture. They did do a non-specific blood test to confirm it was herpes but it did not tell be the type it was. From research I learned visual diag is often a wrong diagnosis.
Confused I went to a gynecologist a few weeks later who did a specific blood test that said I had Hsv-1. She explained this is often a positive because of oral cold sores.
When asked about telling my partners what I have she said it is a gray area- as I do not know for sure where it is as it was not cultured -I can tell partners I have oral hsv1 if I choose to. She said if I have what I believe are genital legions again to come in to see them right away so it can be swabbed.
I came back a few months later with what I thought was an in grown hair or a herpes symptom that they swabbed and came back negative, I have not had any symptoms or legions since the initial outbreak in 8 years so I have not been able to ever get another culture.
From an ethical standpoint I have told partners I have Hsv-1 the oral kind that they can get genitally from oral sex. While also practicing safe sex.
Was this in your opinion, the correct disclosure? Ive always been confs as both doctors said v different things.
I am married now to a women who I disclosed OralHsv-1 to. The possibility that she can also get it genitally weighs on me as there is no real protection women to women for it. But I’m not certain I have GHSV1 She has gotten tested 2x and has tested negative
April 29, 2020 at 2:14 pm #70049Terri WarrenKeymaster
yes, this is the correct disclosure, in my opinion. Your first episode infection sounds like you got it orally and genitally. but the oral infection is the one that sheds most often. Remember that the IgG test misses 30% of HSV 1 infections so her test may or may not be correct.
If you are the giver of oral sex to her, that is really her risk of infection. Genital to genital transmission of HSV 1 is rare indeed. If you have disclosed to her that you have an oral infection, I think that’s your obligation. The genital infection, if you have one at all, is far less risky for her. Once a person has had HSV 1 genital infection for 2 years, on average, they give off the virus on 4 days out of the year but the oral infection is given off way more often than that.
May 4, 2020 at 7:39 am #70136Lauem3Participant
Thanks Terri. That is very helpful.
Is the only way to know for certain if I had G-hsv1 -if I ever have another symptom and get a positive culture?
May 14, 2020 at 12:22 pm #70193Terri WarrenKeymaster
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