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Hello
I have been single most of my adult life. I had a horrid sexual encounter in 2017 with male i met through internet. He was very controlling and pushy and I ended up having sex when I didn’t want to.
I was in pain down below and had a sore throat a few days after. I panicked that I had herpes and confronted him. He didnt seem to care. I had a small hard limb on inner labia. All tests and swab came beck negative.
On and off I have had odd symptoms
A few large boils in my undercarriage, vaginal and anal pain, a couple of small hard lumps on inner labia, itching and sharp, shooting nerve pain in vagina and vulva area. Tingling buttocks and legs.
I have fibromyalgia, Sjögren’s syndrome and pernicious anemia.
I have not had any type of sexual encounter since as too scared and feel disgusting and suicidal at times.
I had two lots of bloods done through company called “let’s get checked”
First results last year (3 years after encounter )
Igg hsv2 0.1 and hsv1 0.5
Second lot done earlier this year
Igg hsv2 0.1 and hsv1 1.05 which they call equivocal as under 1.1
I cannot understand the big jump and I am now so low and panicky.I am on list for sexual counselling, on anti depressants
Whhat reason is there for this increased result and does it therefore mean I have it
I have asp had itchy crawling sensations on nerve endings on face on and off around my nose and mouth.
I do have an old whiplash injury on one shoulder and a lower back injury from a fall some years ago
Any help or advice gratefully receives. I have no idea how to go about getting western blot done. Would this be advisable.
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The IgG test for HSV 1 is not great – it misses 30% of infections so it’s difficult to know what your equivocal value actually means. If you want a clearer answer, the western blot could provide that. About half the US population has HSV 1 infection so it is very common indeed. If you are really positive, we cannot know if your infection is oral or genital if you’ve never had a cold sore around the mouth or nose.
Terri
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The western blot detects 95-96% of HSV 1 infection and >99% of HSV 2 infections.
I wasn’t aware that UW offered this consultation service, but I would assume that that would be a good place to start, yes, if they can order the western blot for you. I called both virology research and client services and neither know what that’s about but clearly, someone told you about this so I assume it would be helpful?Terri
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I certainly think that is an excellent chance that your symptoms are not due to herpes, yes! And you’ve jumped to the conclusion, it sounds like, that you have this both orally and genitally, and I’m not sure why you think that exactly.
If you live in the UK, I know a person in London who does the blood draws. And then the sample can be shipped to UW.Terri
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This is difficult because while you can ship your blood to the University of Washington and get a western blot, it is more than 200 pounds. The shipping alone is very expensive. But you can certainly check on what it would cost to ship a small package weighing less than one pound to the US from where you are. I have a person in London that can draw your blood.
I think the positive is very likely a false positive (85%) but we can’t be sure.
If you have a credit card, you could put the visit with me and the test on your credit card and pay t off gradually as well as the shipping. Let me know.Terri
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You could be negative for both.
I don’t know of somewhere closer than London for you to be drawn, but you can be drawn with one serum separator tube anywhere that will draw it and spin it. the shipping to the US is going to be very expensive, just so you know.Terri
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1)Just trying to work out what to do as don’t have credit card, could I use debit card?
I think that would work2) have you had any experience of people with symptoms like mine and low positives that turned out to be ok? I have been reading forums etc and my symptoms match up so feel pretty frightened that I have it at this point.
Yes, most certainly I have had those people!3) do you think 500 pound would be enough money to complete test?
I don’t know about the cost of the shipping. The test itself and consult with me is $325 US dollars, then you would need to add shipping and the cost of having your blood drawnTerri
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I am not at all convinced that you have herpes! You’ve really jumped to some conclusions here that may or may not be at all accurate.
Have you given up on trying to find a way to get the western blot? if you want to do a consult with me, just make up a US address and phone – you could use my old clinic address, 2330 NW Flanders, Portland, OR 97210 and the old phone, 503-226-6678.
Re-checking your IgG results, I think it is very likely that you have a false positive on your IgG test. I would strongly suggest somehow getting the money together to do a consult, and ship blood to UW. You are making yourself miserable with all of this and I don’t believe you need to do that! Please – just take one step at a time and let’s get the blot done for you so you can start anew.Terri
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If you had HSV 2, I think your numbers would be significantly higher. The risk of you having HSV 2 with a 1.45 is 85% that it is a false positive, but you are unlikely to convinced of the statistics, given the symptoms that you seem to be experiencing.
If you have oral HSV 2, which is extremely unlikely, it is unlikely to be shed from the oral area.
There is really no more that I can do for you as you are in quite a different place about this than I am.
Terri
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