November 2, 2021 at 10:52 am #75383Miss StackParticipant
I was clinically diagnosed with ghsv2 in August 2019. I treated the initial outbreak with 10 days of valacyclovir.
After that I stayed off anti virals for a year to adjust to the virus. I returned to valcyclovir for another 10 day cycle in spring of 2021 due to continuing symptoms and once again in the fall because the symptoms still continued. After the intense 10 day cycle this fall I went directly into repression therapy 1000mg a day for 2 weeks and then to 500mg a day and am still at this stage today.
I have only experienced 2 outbreaks since contraction. I have had symptoms ongoing daily since contracting over two years ago. These symptoms include tingling, shooting pains, tenderness, burning, itching all in; lower back, butt, thighs and genitals. I experience excessive discharge when symptoms are high. Excessive perspiration is more common now than before contraction, especially when consuming anything acidic. (Coffee)
Changes I’ve made to control these symptoms began quickly after contraction and have been ongoing, they include:
Quit drinking alcohol
Quit drinking caffeine
Started anxiety medication
Lymphatic system therapy (dry brushing)
Lowered consumption of high arginine foods.
Lowered consumption of acidic foods.
Gut health had always been a struggle, I have been to many doctors have no gut health diagnosis. I almost only eat stews, soups and easily digestible foods now. The virus becomes very active when my gut is unwell.
Presently I’m on the 500mg a day valacyclover and living an active clean life. I still experience symptoms daily mostly in my lower back, soreness, tingling and shooting pains.
Am I experiencing prodrome symptoms?
What other options do I have to settle these symptoms?
What could be causing this to continue daily for so long?
Is the virus shedding continously and these symptoms are a sign of that?
Any direct would be helpful. I’m out of ideas at this time. Thank-you for your time.
November 8, 2021 at 7:00 am #75412Terri WarrenKeymaster
I don’t believe for a moment that all of these symptoms that are occurring continuously have anything at all to do with herpes. BTW, there is no reason to stop drinking coffee or alcohol as it is related to suppressing your herpes infection. But great you quit smoking. And there is no evidence in the actual person that certain foods trigger herpes to be more active. But if these things make you feel better, that’s fine, just don’t think they are actually helping with your herpes infection. 500 mg of valacyclovir is fine for suppression.
I would say that you should note that all these lifestyle changes and food changes and medication aren’t changing your every day symptoms, so that suggests to me that herpes is likely not the issue that is causing these symptoms, wouldn’t you agree?
I don’t know how you know that the virus becomes very active when your gut is not well if you’ve only had two outbreaks since diagnosis. How were you diagnosed, BTW? You mention clinical diagnosis only?
November 9, 2021 at 11:12 pm #75484Miss StackParticipant
I was diagnosed with a swap at a hospital during my the initial outbreak. I haven’t had active sores since the initial break out.
I hear what you are saying and it certainly sounds nice to think the symptoms I’m experiencing are not caused by the virus. My reasoning behind believing this symptoms are virus related is because they started immediately after contracting the virus and never went away. The symptoms are fall into the category of common prodrome symptoms so I though.. tingling, itching, shooting pains, tenderness all in butt, lower back and genital area.
If you tell me this is not related to the herpes virus I will do a happy dance and move on with my life.
I would like to ask though, is it possible to have nerve damage from the virus? Is it possible the virus altered something in my nerves for these symptoms to continue long term?
What else could be causing these symptoms if I’d never felt any of these sensations before contracting herpes?
November 17, 2021 at 9:00 am #75537Terri WarrenKeymaster
OK, so initially you said you were clinically diagnosed and now it’s clear that you had a positive swab test for HSV 2, is that correct? So you also had a laboratory diagnosis?
You also said you had had two outbreaks in your first post but in this latest one, you said you’ve had no recurrences? I’m confused.
The virus does not cause nerve damage, no.
I can’t say for certain that your symptoms are not related to herpes but to have the same symptoms ongoing for years while taking adequate doses of suppressive therapy seems very unlikely to me. the only way to know for certain is to have herpes swabs taken when you are having these symptoms.
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