September 29, 2021 at 10:13 am #75031larkspur712Participant
Good Morning Terri,
Thank you for taking these questions. The last few days have been very stressful. I went to the doctor for my annual two weeks ago and asked for a full panel of testing since I haven’t been tested for everything in several years. They did it (didn’t mention the CDC doesn’t usually recommend testing for HSV when you have no symptoms, which I don’t) and my results from the IGG test came back HSV-1 negative, HSV-2 1.17 (positive higher than 1.09). The HSV-2 IGG supplemental test said negative.
The physician’s assistant told me over the phone that I was positive for HSV-2 and then when I was confused about it and asked if there was any way it could be a false positive (I’ve been monogamously with my husband for the past 3 years), they told me no absolutely not it’s 100% that I am positive and that I have it. They also said it looks like it’s from an older strain, so I wanted some clarification on what that meant? It seems like I may not have been tested for HSV in previous STI panels since I didn’t specifically ask for it but I’m currently trying to track down those records. My doctors office didn’t offer the Western Blot or even mention the supplemental test (and that it was negative)/retesting or that it was a low positive. I only found out the information about the supplemental from looking at the labs myself and the Western Blot through this website as well as a few other forums.
While I wait for the test kit for the Western Blot from UW, should I bother retesting with the IGG in the meantime? Or should I just wait it out? I think the kit will take about a week to get to me, then the time to send it back and run the test. Also any clarification on them saying it’s an older strain?
Thank you for any help and I apologize for the long message.
October 4, 2021 at 11:55 am #75072Terri WarrenKeymaster
Your care was horrible. Just horrible. Did they not pay any attention at all to the negative supplemental test? Why even order it then if you aren’t going to consider the result? The supplemental tests are not always correct, but at least be familiar with the blot in this situation. I am appalled.
I wouldn’t bother with another IgG test UNLESS if it is negative, would you feel completely reassured or would you wonder which was correct? You are going to get the best test so I wouldn’t bother with another substandard test unless financial concerns are significant.
Why would they say this is old? I just haven’t the slightest idea. If anything, a low positive may represent a new infection. But if you’ve been with your husband and only him for three years and he the same, you don’t have a new infection.
If I were in your situation, I would consider legal action. At a minimum, send them the CDC guidelines on STD care, herpes specifically.
Things like this just make my blood boil.
- This reply was modified 2 weeks, 1 day ago by Terri Warren.
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