March 27, 2020 at 8:37 pm #69734
38 year old female. Diagnosed with HSV 2 early 20s through a blood test. Never had symptoms until 6 years ago when I got breast implants. Started getting monthly outbreaks. Got on valtrex daily. For years it worked and suppressed virus. Then about a year ago it stopped working. Tried valtrex twice a day, still no go. Got implants removed 6 months ago and still having monthly outbreaks.
Had a physical recently, blood work all normal including negative HIV test. I don’t drink/smoke or do drugs. I get 8-9 hours of sleep, I eat healthy, exercise, meditate, I take supplements along with an immune support supplement that includes lysine, zinc.
A month ago I pretty much cut out my protein shakes (was high in arginine), almond milk, all nuts. I do still eat chocolate about once every week or two and I indulge a lot. I also drink a cup of coffee a day. I have never had a food allergy test, not sure if maybe allergic to a food and body having a reaction internally which triggers out break. I’m also not sexually active since having all these outbreaks so no relation between the two.
I’m at loss as to what else to try. I was pretty certain my breast implants were the cause of the break out since they started a month after getting implants.
But with them being out, I’m not sure why I’m still getting outbreaks. I thought maybe related to my period but nope.
Any advice would be appreciated. Thank you for your time as well!!
March 28, 2020 at 12:43 pm #69746
Are you absolutely certain that these are herpes outbreaks? Have you ever them swab tested to be sure? If you were my patient, I would try a couple of things (if you are in a sexual relationship with an uninfected person, these won’t apply). You might consider suspending medication and see what happens. The first time you get an outbreak, you could ask for a culture to be done with a screen for acyclovir resistance (Valtrex is broken down into acyclovir). I would suggest that you set up this plan with your provider ahead of time so you can get in right away with an outbreak. Also, I believe the swab test needs to be a culture, not a PCR, for this to be done.
March 28, 2020 at 3:04 pm #69756
Thank you for responding! I’m not in any type of sexual relationship. I’ve never had a swab test done. When I first started getting outbreaks, I would get flu like symptoms and blisters. Now I just get the tingling a few days prior and it’s a tiny red patch. Doesn’t scab or blister. Same spot every time.
Right now I only take twice daily for a few days if I get the tingling, which is every month. The outbreak still happens even when catch the tingling right away.
Originally after one a day stopped working, my doctor had me do twice daily everyday, but I felt it made it worse. I asked her about switching brands but she said others harder on the liver.
I know a different doctor I can try too as I am currently having an outbreaks. Are you thinking I’m resistant to the Valtrex?
Thank you! You are helping many people out there:)
March 29, 2020 at 3:17 pm #69757
I did have another question. Could a unknown food allergy or intolerance cause an outbreak? I’ve heard outbreaks happen when the immune system is weak yet nothing seems to be wrong with my immune system from my yearly physically blood work I just had.
I do have loose stools majority of the time, diarrhea 1-2 times a week and always after I eat when it does happen, and daily gas.
Of course my mind goes to “do I have cancer” that just hasn’t been detected yet, and my body is internally attacking itself.
March 29, 2020 at 4:17 pm #69761
So from your description, I’m not at all convinced that what you are describing are outbreaks. If you were my patient, I would ask that you come into the office right away when you have what you are describing as outbreaks, and get a PCR swab test done. Having a small red area without any blisters or sores really doesn’t qualify as an outbreak UNTIL you have a swab test that is positive for HSV 2. There is simply no reason that Valtrex would make your “outbreaks” worse when you increase the dose. You’ve jumped to a conclusion that may or may not be accurate, but I think you need a lab test to confirm or deny your conclusion. And don’t take Valtrex until you get the swab testing done. Have you ever not treated one of these “outbreaks” to see if it would progress if you left it alone, without medication?
March 29, 2020 at 4:19 pm #69763
Food allergies or sensitivities don’t normally have anything to do with herpes outbreaks. But when you describe having diarrhea twice a week, I think a visit with a GI doctor might be helpful to see if you are sensitive to some particular food and start managing that issue with more accuracy. I don’t think for a moment that you have cancer.
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