April 30, 2020 at 3:27 pm #70113WorriedgirlParticipant
This is my false positive hsv 2 experience
I hope this helps anyone who has a similar story to mine.
I am a white female
Never had symptoms
Was starting a new relationship and wanted to get tested to make sure.
I had never been tested for herpes prior to this.
Tests were done at anylabs and they used labcorp
4 weeks post possible exposure with guy with unknown status
Hsv1 – 1.58
Hsv2 – 2.42
Supplemental – negative
Hsv1 – 1.50
Hsv2 – 2.60
Supplemental – negative
Hsv1 – 1.49
Hsv2 – 2.09
Supplemental – negative
Did western blot with Terri at 16 weeks post possible exposure
Hsv1 – positive
Hsv2 – negative
I had chicken pox when I was little
And mono when I was in high school
The hsv1 is most likely oral since my sister gets cold sores since she was little so I’m sure I got the virus from her, but I just don’t show symptoms
I am so grateful for Terri and what she does for people who need confirmation testing.
Especially since when I called anylabs to ask about the supplemental, she told me to ignore that and to just accept the fact that I am positive for both hsv 1 and 2. I’m glad I didn’t accept that as an answer and did my own google research and found westover heights.
Good luck to all. After obsessing over hsv 2 for 4 months, I am finally ready to move on with my life.
Thank you Terri
April 30, 2020 at 10:26 pm #70115confused20Spectator
This was indeed very helpful… I am in a similar situation right now, and seeing your index value of HSV (which is so close to mine, 2.11) and seeing that you tested negative gives me a lot of hope that mine will also prove to have been a false positive.
I have been struggling with the diagnosis for the past 7 months & I desperately want to leave it behind me.
May 1, 2020 at 12:06 pm #70119c mdzParticipant
I am in the same situation, can’t sleep, eat or think right.
March 2020 My HSV1 60H, HSV2 2.90 Supplemental Positive, but my confusion comes in because I had previously tested in November 2019 and that was HSV2 .90 Negative, and always had tested Negative. No new partner, and my husband tested in April came back Negative HSV2 .10. I am hoping I can come back to put my story where it was a false positive. Just received my Western Bolt packet from UW today but I am so scared to send it. Praying for the best.
May 13, 2020 at 9:43 am #70168Terri WarrenKeymaster
So here’s the deal. I really appreciate worried girl posting this response. In the past week, I have had three people who had a supplemental positive test from LabCorp who were negative on the Western blot. Previously, I had been encouraged by what I saw as a good correlation between negative supplemental test and negative Western blot. But now, I have zero faith in the supplemental test. I guess I would have more confidence in a negative supplemental test than in a positive supplemental test.
It would be lovely if these easily available tests were good but they just aren’t that good, when you compare them to the gold standard Western blot. For the record, I don’t care if people obtain their Western blot from me or their provider. I’m not in this to make money from Western blot consultations. But what I don’t want is for people to believe that they have herpes when they do not have herpes. Another of my latest concerns is Kaiser. When they give IgG test results, they do not report out the index value obtained on that test. It is possible that they are using a test, call the immunoblot, which does not have an index value. But the problem is, even if they are using that test, we cannot know who is testing in the low positive range and needs confirmation and who does not. I am very concerned that there are people receiving positive results from that health system that do not have herpes but live the rest of their lives believing that they do. I have no idea how to fix this or improve it but I would just like people to be aware that when you receive a positive result, if it has no index value, and you have never had any symptoms of genital herpes, you may wish to consider getting a confirmatory Western blot. Unfortunately, and this is a big shocker to me, is that the Mayo clinic also does not report out index values, at least that is what I have been told from several patients now. The Center for disease control is very clear that anyone with a low positive value needs a confirmatory test, preferably the Western blot. But when big health systems like these two do not report out index values, how would people know if they have a low positive or not.
I will get off my bandwagon now but I hope someone reads this who has been told they are positive with no index value I Do not have symptoms. These are not perfect tests.
- This reply was modified 1 month, 3 weeks ago by Terri Warren.
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