April 13, 2021 at 6:19 am #73256AdhocParticipant
I was diagnosed with Genital HSV1 at the end of this past February via a positive swab test. I took a 10 course of Valtrex.
I am a 28 female living with trigeminal neuralgia and I am being investigated for MS. A couple of years ago I was also in a car accident that caused me a lot nerve issues in my pelvic floor.
My primary OB was triggered by an allergic reaction to an antibiotic that I had been taking for chronic tonsillitis. I am currently awaiting surgery. The OB nearly put me in the hospital with how ill it made me. My immune system has always been compromised and I have a history of being unable to fight infections including a lymph node infection that required surgery and a week hospitalization.
I experienced my second OB a month later (the beginning of this month) perfectly in line with my tonsil infection reappearing. Much more mild than the first time and I started daily antivirals because I do not want to experience an OB every time my tonsil infection reoccurs (monthly for the last 9 months)
This morning, not even 1.5 weeks following my second OB and with 1.5 weeks of twice daily valtrex I woke up with horrendous nerve pain down the side of my left leg. I am unable to even walk. This is accompanied by itching, pain urinating, and pain at the site of my OBs (entrance to my vagina) but no lesions.
I am very lost as to the current progression of this infection and would love some guidance. I am incredibly discouraged. My question is:
Is the current rate at which I am experiencing OBs indicative of the pattern of OBs I am likely to experience them in the future? Is it possible that I will experience a cluster of OBs right now (as I am only two months into the infection) and my compromised immune system is struggling to create antibodies but it will eventually adjust?
- This topic was modified 3 weeks, 3 days ago by Adhoc.
April 26, 2021 at 11:18 am #73338Terri WarrenKeymaster
When you say that you are experiencing recurrences, do you actually get sores in the genital area? If yes, then I think you should consider daily suppression for perhaps six months to try and let things calm down a bit. the average number of recurrences for people with HSV 1 genital infection is one every other year, but sometimes, it takes a while for the immune system to grab on to the virus and mount a good immune response. Try to not be too discouraged at this point – it’s just too early for that.
April 26, 2021 at 12:22 pm #73363AdhocParticipant
I have been taking 1g of Valtrex daily for the last month and have had 2 additional outbreaks. The Valtrex appears to genuinely be doing nothing. The lesions don’t blister – they come to the surface and are flush with the skin of my labia and are white like a canker sore or a burn. It’s always in the same spot as the original outbreak.
Between the prodrome symptoms and the actual lesions I don’t know if I have even had 2 weeks in the last 2 months without symptoms since the primary OB. I am worried that this pattern of symptoms means that I will be chronically contagious. I won’t be able to ever protect a partner if I am always a couple days away from symptoms. I also can’t imagine being able to have a natural birth with this pattern of symptoms.
I am not sure what do with constant symptoms and the anti virals not working? Is this really a matter of letting it run its course over the next year? Should I see an infectious disease doctor? I don’t understand how I can have more outbreaks in 2 months than the average person has in their lifetime with g-HSV1
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