Oral herpes

[Confusedblossom]

Hi.

I couldn’t find my last link where I had my questions, so starting a new thread.

I am hsv1 positive through western blot through your clinic. Have yet to receive a positive oral or genital swab with lots of nerve issues going on.

Attempting to determine what oral and genital herpes presents itself like in me. Since I have the numbness, tingling, itchiness pretty much every day with different degrees of severity, hard to tell what’s a prodome and what isn’t. I can’t imagine I am shedding constantly. Psychologically that would be very difficult to handle.

So nothing ever appears on my outer lip….EVER. Seem to have issues inside my mouth more but don’t know if they are H or not. I took a pic to see if you can look at this and see if it looks like h or not. I also have an oral fungal infection which has similar symptoms I assume as h inside the mouth so I just feel at a loss.

Can you look at the pic please and let me know what you think? Also, I have received vials from your clinic for genital swabbing….can I use the same ones for oral swabbing? Can I use the vial to swab this thing on my tongue?

It doesn’t really hurt but I did have numbness on side of cheek and chin. I have been tested for MS and have been diagnosed with post viral syndrome. I also have eczema. All these things have similar prodomes/symptoms and it’s just becoming real hard to differentiate what is what.

I have a partner that doesn’t seem to care about hsv1, but I just want to know when I am contagious. I am scared to kiss him with this in mymouth and we have a date on Thursday. I don’t get to see him often.

[Confusedblossom]

Here is the pic

[Confusedblossom]

It’s not clear yellow. Looks a little cloudy. Doesn’t hurt to touch.

[Terri Warren]

Yes you can use the same swabs for your mouth as you use in the genital area. From the location of this lesion it is hard to know if it is herpes or a canker sore – it could be either. You should swab it and send it back to us.
If the person knows you have herpes, then it seems to me that kissing is kind of his call. Has he been tested to know if he is HSV 1 positive or not? If he has not, I think he should. The majority of the population is HSV 1 positive so if he is, there is no worry about transmission, right?

Terri

[Confusedblossom]

Well I went to swab it and it has disappeared. I dunno. I swabbed the area where it was.

We will see what comes back.

He had a long term partner with oral hsv1 and is not worried about it at all. I asked him if he’s been tested and he said no. I don’t think he cares to.

I guess I will just see what happens Thursday.

Thank you.

[Terri Warren]

Then you’ve done your part by informing him of your status. I hope you will let him take some responsibility for his own health in this situation. Enjoy the Thursday meeting and know in your heart of hearts that you’ve done what you can in this situation, your mind and conscience are clear and you are going to allow another adult person to make their own decisions. You are a concerned and responsible adult and can move ahead with this situation with good feelings.

Terri

[Confusedblossom]

Thank you. Kissing I believe I am ok with.

Oral sex given and intercourse just seems way out of my comfort zone. And it’s going to take a lot of work to get me there.

The sore is back. Don’t know if I couldn’t see it or it refilled. Ran out of vials and I froze the last one. Can I unfreeze it and swab the some one I used on my tongue? Then freeze it again?

How do I get more vials shipped to me? There are 2 areas that I still would like to swab that havent come up yet. Could I call your receptionist and ask her to ship me a few more please?

[Confusedblossom]

Btw here is a pic of the bumps on my lower back and I also had a bumps on my scalp, the last one was behind my left ear.

I do suffer from eczema which drs seem to think they are. I have my doubts. No one has ever swabbed them.

The ones on my lower back that have blood in pic are just bc I scratches them unknowingly. Again never blister and never have fluid

Let me know what you think. Thank you.

• This reply was modified 8 years, 6 months ago by Confusedblossom.

[Terri Warren]

Yes, I can see why you would be concerned about these spots. You can pull the vial out of the freezer and add a swab to it, but the swab needs to be only the ones we sent to you- do not substitute. You may call the office and ask for more swabs and vials to be sent to you. You may tell the front desk that I approved this on the forum.

We’ve used up your most recent subscription. Please renew of you have more questions.

terri

[Confusedblossom]

Ok purchase again.

But for some reason I hve 3 $20 purchases on march 11th?

Anyway, I figure the scalp ones and behind ear are h.

What about te other bumps are concerning? I mean I am concerned as well but you don’t know how many specialists derms and infectious disease specialist saw these and said they were eczema etc. I know tey are likely h or h has cause inflammation in my body which made my skin react.

Anyway if all these things are h it means;
1) antivirals don’t work. Tried valtrex and famvir
2) I have repetitive flare ups (every month) for over a year
3). I never get my h in the same spot:..sometimes they are tailbone sometimes butt sometimes thighs.

How am I ever going to know what’s a blemish, pimple

The conclusion will be I am always contagious which emotionally is too difficult to deal with.

I guess your comment will be lets see the results.

How do you suggest I swab this? They are dry. I don’t get more than 2 or 3 really now. I guess I should swab all of them with a different swab and in the same vial.

Thank you.

• This reply was modified 8 years, 6 months ago by Confusedblossom.

[Terri Warren]

Before figuring they are herpes, they should be swab tested to determine if that is a correct assumption. I don’t know if they are herpes or not, but given you trying to sort out the location of your HSV 1 infection, I think it would be good to rule that in or out for these lesions, that’s all.

I don’t believe that you have gotten a positive swab from any location yet, so when you say you get your herpes in all these different locations, I don’t believe that is actually accurate. You get things that you think MIGHT be herpes in those locations and you are trying to sort out what is herpes and what is not by using these swabs.

PCR swabs will pick up virus even in scabbed situations often. If you want to swab these, then run a swab over the top several times and put it in the vial. You don’t have to use separate vials – if you put all the swabs in one vial from, say, the head area, you will know that something in that swab is positive and that would be the location of your HSV 1 (at least one location).

I see one charge from yesterday for $20 and only one from today for $20. I will keep an eye on this if you are seeing three posts for $20.

Terri

[Confusedblossom]

So I have no more swabs left so I guess I am at a loss for now until the new ones come in the mail.

I will call tomorrow and ask for more swabs to be sent.

Will ship swabs I have currently used out next week and we will see what results I get from those.

Thank you.

[Confusedblossom]

I have swabbed this one area of my vagina where I seem to have recurring issues.

If I have had a viral culture taken on fluid filled bumps that are in fact outside of the 48 hour window and they are negative could I believe these results?
Wouldn the virus still be in the fluid even passed 48 hours?

[Terri Warren]

Yes, I would say that if you have a viral culture taken of fluid filled bumps and there is still fluid in the bumps when the swabbing was done, that these results are likely accurate.

Terri

[Confusedblossom]

Ok so I hve to have the worst luck as I shipped my swabs out Thursday evening to ur clinic with freezer things to keep it cold. It got held up in customs and as of end of day Monday you haven’t received it. You likely will get it tomorrow. Should we even bother processing it? The vials are not frozen now. Does that mean we can’t rely on accuracy of the test?

Also here is another pic that has a bump that appears. The red one is fresh and the brown is scar from last. I feel minor itching before it comes but I did have some anal burning after. Redness has mostly gone now and looks like a tiny mosquito bite.

[Confusedblossom]

This is what it looks like this morning. I put steroid cream on it once. It never got fluid or became a sore. I don’t have ur other swabs in the mail yet so I can’t swab it.

It’s on my bum…don’t know why there is a little scab there. Sometimes I touch it maybe irritated it or when I sleep I could brush it.

[Confusedblossom]

It looks like an irritated pore. Do h lesions show up on pores?

[Terri Warren]

When did you ask for more swabs from the office? Do you remember who you talked to about this?
This looks nothing like a herpes lesion to me at all, it just looks like a little pimple or an irritated hair follicle.

Terri

[Confusedblossom]

I am in Canada. Last time when u sent swabs it took a week and a half to get. Seems like it’s the same this time.

Thank you for your advice.

Sorry I posted a few items. The samples I sent u were shipped to you this past Thursday evening. You will likely receive it today. The sample won’t be frozen anymore and it’s been 4 days , should we bother developing it?

[Terri Warren]

These samples do not need to be frozen. They are gene amplified testing and they could sit out on a counter for 2 years and the results would be the same. No worries!

Terri

[Terri Warren]

Blossom, I am going to end this thread now. I know you now and if you want to post more questions, I want you to start a new thread because I can’t keep track of your payments. Also, when you post, please be sure to put everything you want to say in one post that day because we could POSTs not actual questions. So for example, you’ve posted four posts in the past 24 hours and each time, my computer calls to review the posts when I think it would be OK not to look at them separately at the time you do it.

So if you do want to post more questions, how about if you start over. Thanks so much

Terri

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