March 28, 2020 at 12:11 pm #69737SOSParticipant
I’ve posted before, but just to summarize my situation:
-genital outbreaks almost weekly since 2016
-solely triggered by alcohol (even 1 glass). I take clients out weekly and any time I have a drink, the following morning I get a faint tingling then an outbreak
-outbreaks are 1-2 small sores inside vagina, maybe slightly bigger then a needle head that typically go away within 48 hours + an itchy irritated anal area. Outbreaks have lasted up to around 5 in the past, but very very rarely.
-lower right abdominal pain-ultrasound came back with nothing
-3x PCR tests, all negative. But the outbreaks start to heal so fast I feel like the PCR test might not be picking it up.
-2x igg rests that came back positive for HSV1
-western blot came back positive for HSV1
-1mg valrex daily use does absolutely nothing for the outbreaks, nor does any amount of Lysine/any other immune enhancing supplements
-I’ve had cold sores, sometimes in conjunction with genital outbreaks
-saw infectious disease doctor and just put me back on valtrex
I guess my questions are:
1) have you EVER seen HSV1 behave like this? I mean it sounds very uncommon, but if it walks like a duck and quacks like a duck…
2) Could I be immunocompromised and that’s why the Valtrex doesn’t work? Or my body just doesn’t produce the antibodies to fight this? I am otherwise a young, healthy, 25 year old girl who RARELY has any other health issues
3) Do you have any idea what else this sounds like if it doesn’t sound like HSV1??
March 28, 2020 at 12:56 pm #69749Terri WarrenKeymaster
With a negative PCR three times from lesions, on suppression, symptoms unaffected by suppression, western blot positive only for HSV 1 and lesions lasting 48 hours routinely, monthly recurrences, this certainly is the genital HSV 1 duck that I know and love! It doesn’t fit even a little.
A positive HSV 1 antibody test says nothing at all about where your infection is, only that you have it.
To be further convinced, you might ask your provider for swabs to take home and gather right away, when these sores first come up.
If you are still concerned that your testing is missing an HSV 2 infection, you might want to obtain the herpes western blot. But still, if that was the case, I would expect the PCR swabs that you’ve had done to be positive.
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