June 9, 2021 at 9:09 pm #73863AvaRileyParticipant
I have GSHV-2, diagnosed in 2007. I experience frequent genital tingling & aching nerve pain down the back of my thighs. These turn into full lesions sometimes. Often they do not.
My triggers seem endless: alcohol, chocolate, nuts, high sugar foods, sunlight, caffeine, sleep deprivation, stress, masturbation, sometimes before my period, and now I wonder heat/tight clothing? I’ve kept a log to track; each of these have been connected to an outbreak. (A note about diet: I did a Whole30 once & had no symptoms; I did it again & had frequent symptoms.)
I’ve tried 500 mg of Valtrex & Famvir. Neither did much. Now I’m back to 1 g of Valtrex daily. I also take 2-3 g of daily Lysine, extra Zinc/Vitamin C, and a multivitamin. My gyno recommended a regular sitz bath and tests frequently for BV, yeast, & other STIs.
My bloodwork is normal, w/ the exception of a Vitamin D deficiency (working on that). I am a mental health clinician and understand the importance of managing stress; I see my own therapist and take Wellbutrin for depression (which is managed). However, I live alone, and my career — especially in the last year — has challenged my stress management. Finally, I have a history of sexual trauma and wondered about psychosomatic responses. I’ve processed these in therapy, but share here if it’s relevant.
Over the weekend, I took all meds — including 2 g of Valtrex because I had a date w/ a sexual partner this week. I focused on sleep, avoided the above foods, but then had a stressful work situation last night. This morning, I woke up w/ tingling & nerve pain down my thigh. I took my meds; the nerve pain still remains. I had to cancel my date, and I’m feeling upset/at my wits end.
Besides trying acyclovir & adding exercise/mindfulness, do you have additional treatment recommendations for ongoing tingling, nerve pain, & outbreaks? It feels exhausting to manage so many triggers, and it’s impacted my relationships. I appreciate any specific thoughts you have.
June 16, 2021 at 3:09 pm #73903Terri WarrenKeymaster
Well, I think you are assuming that when you have tingling and pain down your leg that that is a herpes outbreak. I wouldn’t be so sure. If you were my patient, I would advise that you take swabs home to gather PCR swabs of the entire genital when you have these symptoms to see if there is actually herpes virus present. Do you have a provider that you could discuss this with? You would gather the swabs and bring them to the lab and drop them off, with a lab requisition from your provider. If these things are happening routinely while on suppression, I suspect your suspicions may not be correct. it sounds like you are basing a lof of your life decisions on your impression that you are shedding virus at all of these times.
If valacyclovir is not helpful, I doubt that acyclovir would be either – valacyclovir is a prodrug of acyclovir – better bioavailability.
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