December 14, 2014 at 8:19 pm #2273ConfusedmonkeyParticipant
Hi Terri. Please see my original post as background. I just can’t seem to shake off this worry that I have contracted hsv. Just when I think I’m in the clear and there is nothing unusual going on down there I see something that makes me worry. Thursday night I noticed small red circular cut on the underside of my shaft. It never hurt but seemed open. It seemed to dry up and now almost gone. There wasn’t a scab or anything. I know it’s really hard to diagnose but I’m sick and tired of this. I don’t ever recall seeing these things prior to my exposure.
So here are my questions.
1- is there like a take home swab that I can do when I see something like this so it can be tested?
2- we went through the reasons for an indeterminate hsv 2 result on the western blot on my first post. This week it will be 6 months since That test.
In order to try and move on from this do u think I should retake it?
I’ve been chasing this test and this damn disease for almost a year and I Am so tired from it. How do I close this chapter in my life And move on??
December 15, 2014 at 5:53 am #2275Terri WarrenKeymaster
Yes. You can ask your health care provider for a PCR swab test to take home. That way you can swab at the first sign of any lesion ,such as the one that you describe. If they won’t give you a test kit to take home, our clinic can supply you with that kit. You would need to establish care at the clinic for this to occur via a phone consultation.
Yes, I think you could take it again. If it is still indeterminate, then I would ask if you would be interested in participating in a study of an investigational antibody test. I would also make the assumption that you are not infected – that is the standard for how to interpret two indeterminate western blot tests 6 months apart.
December 15, 2014 at 6:03 am #2277ConfusedmonkeyParticipant
Hi Terri. Thanks for the response. Have u seen the western blot go from indeterminate to negative before?
I don’t know how to even tell others of my status if I were to begin a relationship with them. This all seems like a nightmare. At least others can get an answer and know what the true outcome is. This limbo has taken a terrible toll on me. Sorry to vent but I’m really getting sick over this.
I’ll call ur lab and order the pcr kit.
If I get an indeterminate again can I be done with this? Have u ever seen consistent indeterminate results and have a patient actually be positive ???
December 15, 2014 at 7:00 am #2279Terri WarrenKeymaster
I can’t recall if I’ve seen an indeterminate go to negative. I have most often seen indeterminate stay that way. That’s because there is some cellular protein tripping the test artificially.
We don’t have a lab but we can provide you with swabs and we can return them to a lab.
If you get another indeterminate six months later, I would suspect you are negative, not positive.
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