November 10, 2014 at 7:42 pm #1767

Participant

Thank you kindly.

I have seen a gynaecologist who told me to go to a neurologist. Saw a neurologist who told me to go to a gynaecologist. MRI negative for MS

Infectious disease specialist couldn’t offer me any help todsy but did refer me to a vulvar clinic. Earliest appt is April 8th.

I would like to do a western blot and will arrange with your clinic. I assume I will call to arrange.

Only problem is I won’t know if it’s an old infection or new as my other tests did not give me numerical results. Basically it’s been almost a year since exposure so if this is a new or old infection, I assume my antibody levels would be similar as I have had no new exposures during this time.

So with a negative western blot, I will clearly believe I am negative.

However, with a positive, what will be my next step bc hsv1 can be anywhere? Do you also do PCR swab test kit so I can do it at home.

I don’t know what’s going on with my body…I am scared and I feel contagious all the time bc I have constant symptoms with varying degrees of pain on different days.

Have you ever heard of herpes causing nerve pain permanently genitally? I know there are no medical studies that support this claim but in your many years of experience…have you ever heard of this from one of your patients? I think the correct term is vulvodynia or sthng like post heretic neuralgia.

Again, so happy you could be a great resource in this stressful time. I have been on a quest for a year and I am no closer to any answers