Reply To: Likely? Places to go for support?

[cant deal]

Thank you for the quick response and the Australia reference. You opinion that it does not sound likely, does make the waiting more bearable. At each stage that she saw a doctor, none has said it presents like herpes.But I am aware, som people are not typical. Just to clarify, the negative igg tests were first done at 15/16 weeks. It was done in a modern Eurpoean city, but I just wondered how good the etst was if it didnt give any numerical values – just HSV1 NEGATIVE, HSV2 NEGATIVE – what do you think re this test? The 20 week one is the one we are currently awaiting results for – along with a swab for the rash. Do you put any weight on the cluster of other less common symptoms?? ie 1/’flu like symptoms’ she has a really bad cold that original started with a very sore throat and glands (which has gone) lots of mucous, stuffy nose and hacking cough (LPV ab prescribed). 2/ small anal fissure. 3/ swollen lymph gland in groin beneath rash. The rash at around day 5 now did not blister and is seeming to recede, as the ‘pimples’ are now flat and look more like small red/purple dots.(bacterial cream being applied). The discharge was fleeting and lasted only a few hours. The discomfort after urination just seems to come and go randomly days or weeks apart. If I could also says an opinion at this point. I knew very little about herpes or stds prior to this and have been thrown into a different world due to the necessity of researching this. I had no idea it was so common or rarely recognised by those carrying it. I cant believe how poorly authorities worldwide have handled this. I t should be compulsorily checked for due to its infectiousness. If anything else was this prevalent and growing fast, it would be treated as an epidemic. Far more money should be invested into finding a cure for something so widepread. Secondly, as I see from my daughter, it is regarded as similar to a life sentence. She is beautiful looking, smart, popular and at university studying for a top career – yet I know if positive, she would throw it all away and slump into a deep depression , or worse. She feels there would be no love, marriage or children-so not a life worth living. Therefore to me, it seems to bear a stigma akin to aids. Yet from my reading it is no more than a small skin infection. It doesnt kill you, it doesnt make you infertile and I just dont understand why there is quite the level of grief around that. It seem to all centre around being a socal pariah – yet passing on chickenpox or cold sores doesnt elicit the same response? Again I think there should be a concerted effort by authorites and others to 1/ get a cure faster and 2/ destigmatise. I am sure if more people realised they were carrying it and how much of the poulation was infected, it must surely lose its sting. An occasional rash (if even that) is surely not the end of the world.even if most of us carried it, so what. There are also many people carrying the genital wart virus, and that has a cancer link – yet that does not seem to attract the awful responses that herpes ilicits. If they do not find a cure and/or vaccine soon, I believe the majority of us will surely be carrying it? In my efforts to find some support, I found an American site called H Opportunity which I recommend to others, as the founder, himself a carrier, seems to share my view. I dont know what these test will show for my daughter, but for those of you who are infected, I really feel your pain. It is so unwarranted. You are exactly the same person- just with and occasional rash. So many good and unsuspecting peole have been exposed – and it need not have happened, if there had been a public information and testing drive. I dont see that it should have to make the deep impact on your life that it does – my thoughts are truely with you. I am so glad I am now educated about this and see it in a different light.