1. I have not been able to dismiss herpes as the culprit here…should i?
HSV 1 genital infection just doesn’t behave in this way.
2. Have you yourself come across people who suffer long term with symptoms, especially with no outbreaks?
Not with HSV 1, not that I believe are related to HSV 1, no.
3. My neurologist literally said he doesn’t know, try these meds, good day…would you recommend
I think you’ve hit the specialties.
In an earlier post, you said you knew you had a history of HSV 1 – I assume orally.
I really don’t understand why you think that you are the exception to the rule that once you have it in one location, you are very unlikely to get it in another? And not only get it in another, but have a raging case as well!
Like your other providers, I would encourage you to believe that all of these very troubling symptoms are not related to HSV 1 genital infection. That’s really all I have to say about this, I’m afraid.