First I would like to say I appreciate the work you’re doing and how big of an advocate you are for accurate testing. It’s really frustrating going to a doctor that doesn’t understand how unreliable testing for HSV is. Over the past month I have gone through the worst time of my life because my medical provider decided I had HSV2 despite testing with a 1.2 index value and then a negative right after. I don’t understand why a medical professional would be so quick to diagnose and not advocate for the most accurate test possible. So, thank you for being an ally and advocate for us. I’ve seen the amount of lives that you have changed by advocating and helping them receive western blots despite their PCP writing them off as HSV2 positive.
I have a few questions I would like to ask:
1. What do you believe the likelihood of me having HSV2 is with zero symptoms and the following index scores: 1.2, negative, 1.8, 1.7, 1.4, and 1.8. I have tested repeatedly because I have pretty severe OCD, so when the NP I saw diagnosed me as HSV2 positive, I couldn’t comprehend how when I tested negative most recently at the time. So, that’s why I am now doing the western blot.
2. I’ve seen you touch on balanitis. I’ve sent a picture of the gland to a doctor and they believe it is balantitis. I do not have discharge or anything. It gets more irritated after intercourse with my partner (using a condom). I did have chlamydia 3 or so weeks ago. This started then and has been ongoing for about a month now. Could this be herpes related? I’ve seen you say that balantitis isn’t herpes related, but I believe that was in a thread from 2019 and I’m wondering if anything has changed. I see online that herpes causes balantitis and I’m wondering if that’s accurate or not? Especially if I’ve been having this rash type thing for almost a month now.