Let me first I think there has been some questionable advice here. When you’ve had the symptoms and had an antibody test, the test indicate that you have been infected with HSV one for a long time prior to this encounter. You did not have sores consistent with herpes, at least from your description with me.
1. Does this sound like PHN to you?
No, not due to genital HSV 1, it doesn’t
2. What are outcomes like for patients with genital PHN? There is virtually no information I can find on the internet about genital PHN lasting as long as mine has.
I think that is because it is very unlikely that that’s what’s going on here.
3. I have a follow up with my Neuro in 3 months. He thinks pain likely gone by then. What questions/concerns should I bring to him?
I could be pointed out that you have HSV one way before you had this encounter with your wife and subsequently got a cold sore. We don’t know if your HSV-1 infection is oral or genital unless you have had a cold sore at some point in your life that you can recall. If you have had a cold sore that you could recall at any point in your life, then it is extremely unlikely that you would subsequently acquire genital HSV 1.
4. I am afraid to kiss my wife and get oral HSV1. HSV1 has had me in pain since march. Is that crazy?
I don’t think I describe it as crazy but I think I would describe it as uninformed. You already have HSV one and you had it when you thought you got new genital HSV 1. I think you’ve been getting some bad information or at least incorrect information and have made some decisions based on that that aren’t reasonable.
Terri