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I agree it doesn’t sound like herpes, but I just can’t explain what has happened. The reoccurring cuts in my bum crack just have no other explanation.
One final question please.
In terms of reoccurrences is there anything documented regarding the most reoccurrences within12 months?
I must be on 24 as it seems to come back every couple of weeks and then all the other continuous symptoms are too much. Is this sort of reoccurrence unheard of?
Would there be any complications if I got HSV1 both orally and genitally at the same time? As in would my body struggle to fight it off if it was in two places ?
I’m worried I have a rare HSV variant then is more frequent, presents differently and is more transmissible and doesn’t respond to medication. All the vital mutations with covid has made me feel this could be possible. Thoughts?
Also as mentioned the bbc in the UK documented two ladies dying from HSV following giving birth, presumably herpetic whitlow infection. How is this possible? If it is just a minor skin disease.
The swab test was negative. This was 3/4 days after 1st symptoms and it had gone by day 7ish. So may not have been accurate is my worry.
To be honest Terry I’ve got so many worries associated with this and it has consumed my life for near 2 years. I am worried I have genital HSV, but I can’t establish if this is correct despite trying. The fact we don’t test for this as standard in the UK and the prevalence of 2/3 of the global population having it is making it tough to work out. A few doctors have seen the linear cuts in my crack in the flesh, my GP and GUM doctor and said no it is not herpes. Then I have shown pictures to other professionals who have said it isn’t herpes then some have said it could be atypical herpes. Seems nobody actually knows much about herpes but me and you. That was a joke because I have read so much.
I am not in agony and it is not constant but I am irritated in mild pain 2/10 often through the day. Burning at the top of bum and dry red glans. It has changed by sex life, It hurts in the urethra to masturbate and everything gets annoyed, like more blood flow underneath the glans. I get mild itching.
So yes pain is mild but, severe change in everything.
I guess my have you ever heard of pudendal neuralgia or any neuralgia from HSV1? Or any constant symptoms. I read lots of people who say this thing but disregarded as not herpes, is there any research to back this up? How could one get neuralgia from shingles, which is massively recognised and not from HSV? I had shingles 25 years ago.
The change has come from this event and destroyed everything I have, so I need to keep searching.
How do you test for acyclovir resistance? Could Valtrex work if you have no joy with acyclovir? Just a thought, I know they are the same to an extent.
Any input on continued symptoms would help.
I have done 4 weeks of doxycycline then a few months later I did 2 weeks azithromycin and 7 days flucanazole.
I would have expected that to clear any bacterial infection, would you say that’s fair?
I have done 2 months acyclovir 2 x a day 400mg with no resolution. I have also had the area swabbed and have constant symptoms, so agree it doesn’t sound like HSV, but as above it’s all I have.
My thoughts are some sort of pudendal neuralgia in that area caused by HSV infection.
Also what are your thoughts on different variants of HSV? In the UK I read an article on the bbc website about two woman that died from HSV infection after being infected during a medical procedure.
Thank you Terri.
The reason I am focussed on GHSV1 is that it is the only thing I have tested positive for. Well HSV1 by blood. I never knew I had this before. All my symptoms appeared after an receipt of oral unprotected hence the connection.
I am based in the UK but is there any way I can pay for a consultancy, on the phone or even pay for you to review some pictures of my symptoms.
I have not had a bacterial culture of the area and find the doctors during this process so frustrating.
I may have touched around the groin area and I did apply some cream. I can’t fully recall as didn’t have this as herpes at the time. This was in September time but I am concerned as I mentioned above.
So really want to know how long herpes would last on my hand after touching a potential outbreak and would it get through the skin on on my daughter by this touch?
Thanks, I really don’t know where to go. One moment has changed everything in my life. I know not your concern, I just need an answer.
Oral sex was the trigger and what I have does not fit standard herpes but that’s the only thing I’ve got to go after.
One more final question. I touched a sore on my bum trying to work out what it was (at this stage I didn’t know I had herpes and only had a sore cut in my bum not genitals so didn’t think it would be herpes, also what doctors had said) very shortly after I helped change my daughters bum, I did this to help my partner as my daughter had pooped and was turning over. With the same had I touch my sore with I touched her legs/thighs to control her. Could this scenario of passed herpes? She has a handful of small spots come up every couple of weeks, but I don’t know if this is nappy rash. I can’t remember it happening before the nappy change. Would herpes come up every 2 weeks and just be a few red pimple spots. Sorry I’ve ruined my life and can’t bear the thought that I have hers.
Okay thank you.
Have you ever come across a person that developed pudendal neuralgia after contracting herpes? If so how were they treated?
The effect of nerve irritation has been documented from a herpes infection, so trying to establish if this is possible.
Are you saying antivirals work on all people that have herpes?
Does a high igg of 24 for hsv1 indicate how long I may of had this, would you say this is longer than 12 months?
Are there different variants of HSV except 1 and 2? As with COVID different strains have developed which cause worse symptoms?
Is there any connection of how I react to HSV and how someone I give it to would react?
Also just wanted to say thanks for all your help on this site.
Okay well something from that incident has effected that area. I just have a general uncomfortable and slightly sore feeling, which is pretty constant. Anus, scrotum and urethra.
So HSV1 could have been with me for years? I do not necessarily have to have had coldsores?
Say I did have GHSV1 and touched a sore with my hand then touched the nappy area within a couple of minutes could this cause me to pass it on?
Does herpes provide any permanent neuralgia or is this limited to shingles?
How long would you expect any improvement with Acyclovir to take? So in your opinion 800mg twice a day would be okay?
Would it be possible to send pictures of my glans and the perceived outbreak? Like I said I will pay for your view.
Sorry one more point in terms of acyclovir is there any harm in me taking 2 x 400mg twice a day? Just as an experiment?
Thank you Terri.
Any idea what may causes changes to the penis glans in terms of Sti as this has most definitely happened. As mentioned I have tested for all sti’s (except hpv) and only HSV1 positive.
So to your knowledge herpes has never caused anyone to have ongoing symptoms and would not effect the bladder?
No blisters on my penis but cuts on my anus within 10 days, if I only received oral would this appear on my anus?
It’s hard to describe the rash as it was red spots.
Would you be receptive of me sending some photographs for your review? I am happy to pay more or use it as my final post.
Also say this was herpes and I touched a cut on my bum prior to changing my daughters bum and made skin to skin contact without washing my hands, could this pass on herpes? This happened and my daughter has had a worrying rash. Could be nappy rash but I am in a bad place with worry. I wasn’t aware of what was going on with me as no diagnosis and a poo explosion so needed sorting ASAP and didn’t think.
Looking at my report I think my Igg for HSV1 was 21.3? Is that high? Does this figure have any impact on anything?